Genetics

Lily in her cast

Brace free time

Tummy time in her brace

Cute baby

Sorry it has been forever since I've posted. While Lily was in her cast she needed near constant contact to keep her from getting upset. So there was very little time for me to make dinner, shower, etc. let alone post on the blog. But here I am again!

Lily is now in a hip brace. She's been in it almost two weeks now and it is going well. We're not sure how long she'll be in it. She gets two hours out of it a day. We visit the surgeon next week and hopefully we'll get the ok to have her out for four hours a day. And it will go from there, checking in with the surgeon every two-three weeks and upping the amount of time she gets to play around outside of the brace. She's still very weak and lost some weight while in the cast. But day by day she's trying to roll over and move her legs. She's really doing well.

Today we met with the geneticists and had some blood drawn for basic genetic tests. We won't know anything for at least 3 weeks but most likely much longer. This is just the first basic test which may not tell us anything at all. Part of the appointment was an exam and there were two findings we hadn't heard before which were:

abnormal palmar crease-basically this means that the creases on her palms are not what is normally seen. After getting home and looking at her palms it looks as though her right hand has what is referred to as a single palmar crease (this is opposed to the three creases that most people have). Are you looking at your hand yet? Anyway, this is an indicator in several genetic syndromes including Downs syndrome.

And the second finding is that her head is in the 50th percentile...for a 3 month old. That was a hard one to hear. Our 11 month old has the average head size of a 3 month old. It really put things into perspective for us. However, she has had 1 cm of head growth since we last officially measured which is fabulous!

On a brighter note, she screamed "Mama" at me last night and is trying to roll over. She's really holding her head up well when she has tummy time and she's more and more interested in everything around her. She thinks it's hilarious when our dog Rosie barks and she's starting to enjoy peek-a-boo. In other words, her development is at different age levels depending on what area you look at. She's just going to do it all her own way at her own speed!

P.S. I tried to upload some videos of her doing all these new wonderful things but I just can't seem to get them on here. Maybe next time!