Preliminary MRI Results

So I talked to the neurologist tonight and there were some findings on the MRI. Lily has agenesis of the corpus callosum. What does this mean? Basically the structure that links the two hemispheres of the brain is completely missing, never developed during pregnancy. As far as a prognosis for Lily, it is still up in the air. From what I've read, it depends on the severity of other brain abnormalities. Some people function mostly normally, some are fairly impaired.

For now, the neurologist is getting in touch with the neurosurgeon that looked at her CT scan last month and they will be comparing the scans to make sure that there haven't been any changes. On the original CT scan they found moderate ventriculomegaly (there are ventricle spaces in the brain; hers were slightly enlarged). It was deemed medically insignificant at the time but the neurologist wants to make sure that they are not getting bigger.

So there is still a lot up in the air but we are happy to know something and to rule out a lot of other things (cancer, MS, MD, etc.). The main thing though is that it goes back to just taking it one day at a time. We won't really know the extent of the problem until issues arise, which we'll address one at a time.

Hopefully we will hear more on the ventriculomegaly next week. At the moment there is some sense of relief, though, as we begin to understand what is causing the microcephaly.